Videos

NCFXF 2024 Fragile X Awareness Video Series

What is Fragile X Syndrome?

What is Fragile X Syndrome?
Steve Strom, President,
NC Fragile X Foundation (NCFXF)

Why is Fragile X Awareness So Important?

Why is Fragile X Awareness
So Important?
Steve Strom, President,
NC Fragile X Foundation (NCFXF)

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Navigating the Healthcare
System with Fragile X
Sarah Tamura, Parent
& Fragile X Advocate

Director of NC DMHDDSUS Kelly Crosbie explains Medicaid waivers and the waitlist.

Understanding Medicaid Waivers
and the Waitlist
Kelly Crosbie, Director, NC Division of Mental Health, Developmental Disabilities and Substance Use Services (NC DMHDDSUS)

David Tillman, a parent of a child with Fragile X Syndrome, shares why early intervention is important.

The Importance of
Early Intervention
David Tillman, Parent
& Fragile X Advocate

Ave Lachiewicz, Medical Director, Duke Fragile X Clinic, explains the importance of advocacy by the Fragile X Foundation.

The Value of NCFXF's Advocacy
Ave Lachiewicz, Medical Director,
Duke Fragile X Clinic

Lynne Martin, a parent of a child with Fragile X, shares why building a community was important for her son, Adam.

Building A Community
Lynne Martin, Parent and Fragile X Advocate