Survey of Needs Step 1 of 5 20% 1) In your opinion, what is the most pressing problem facing people with Fragile X syndrome and their caregivers in North Carolina? 2) Information and Education NeedsThe Foundation is dedicated to providing education, support and advocacy for the Fragile X community. On the list of the six topics below, please rate your need for information and education on a scale of 1 to 5, with 1 being the most urgent need. (Items can have the same numbers if you feel that they are of equal urgency.)2a) Finding support services for people with Fragile X (Click on appropriate box below each question) 1 - most urgent need 2 3 4 5 - least urgent need 2b) How to fund support services needed by people with Fragile X 1 - most urgent need 2 3 4 5 - least urgent need 2c) Developmental and behavior support strategies for people with Fragile X 1 - most urgent need 2 3 4 5 - least urgent need 2d) Clinical therapies and educational services for people with Fragile X 1 - most urgent need 2 3 4 5 - least urgent need 2e) Medical issues facing people with Fragile X 1 - most urgent need 2 3 4 5 - least urgent need 2f) Understanding programs and services as the MCOs transition to Tailored Plans 1 - most urgent need 2 3 4 5 - least urgent need 2g) Do you have any other suggestions for needs that we didn’t include? 3) EventsCurrently, the Foundation is considering two social events in 2023, a Bowl-a-Thon in July (Clayton, NC) and a Fragile X community picnic in October (Central Region of NC). Regarding these plans, please answer the following questions:3a) Have you or your family participated in either or both of these events in the past? Picnic Bowl-a-Thon None 3b) What did your family enjoy most about the event(s)?3c) Do you believe two events per year is: Right number of events Too many events More events are needed 3d) Are there additional recreational, socialization or lifestyle events you would recommend? 4) DemographicsThis information helps us better plan our programming.4a) Are you a: Person with Fragile X Parent of someone with Fragile X Grandparent of someone with Fragile X Sibling of someone with Fragile X Other relative of someone with Fragile X Caregiver unrelated to someone with Fragile X Professional serving the Fragile X community Other 4b) Where do you live? Urban city Suburbs Rural or country 4c) How old are you? Under 30 31 to 45 yrs. old 46 to 65 yrs. old Over 66 yrs. old 4d) If responding for a person with Fragile X, how old are they? Newborn to 3 years old Less than 13 yrs. old 13 to 22 yrs. old 22 to 30 yrs. old 31 to 45 yrs. old 46 to 65 yrs. old Over 66 yrs. old Thank you for taking our survey of needs, and volunteers are always welcome.VolunteersIf you would like to volunteer to help plan and organize events, please answer the following: Name First Last Email Phone