Celebrate Fragile X Awareness Day!
Update your social media with the attached logo and share a photo of your family member with Fragile X.
In July 2000, the 106th Congress designated July 22 as National Fragile X Awareness Day. My family is personally impacted by this genetic disorder. In recognition of our awareness day, would you join me in changing your social media profile photo to the attached awareness day logo? Our combined voices amplify the message far and wide. For the past few years during Awareness Month, our Facebook posts alone were seen one million times. One million times!
Raising awareness means continuing to:
- Educate doctors — About Fragile X syndrome, FXPOI, FXTAS, and other premutation carrier issues.
- Help newly diagnosed families — With information about Fragile X and what the future holds.
- Bring Fragile X families into the community network — For support and education at the NFXF.
- Encourage researchers — To research Fragile X.
- Motivate families — To participate in Fragile X studies and trials.
- Advocate to Congress — For research funding and policies that create better tomorrows.
- Educate therapists and educators — About the treatments and interventions available now.
- Tell extended family members — What a diagnosis means.
Thank you for your support.
Steven R. Strom, M.Ed., MBA
President, NC Fragile X Foundation