July is Fragile X Awareness Month!

Fragile X Community Reaching Out to All 100 Counties

North Carolina’s Fragile X community is reaching out to Fragile X families in all 100 counties across the state to ensure that no Fragile X family has to navigate the journey alone and to connect those families with vital resources, services and support as part of Fragile X Awareness Month (July).

“We know Fragile X families live all across North Carolina but many families feel alone,” Brittney Miller, newly elected president of the NC Fragile X Foundation said. “The Fragile X community knows we are stronger when united together and that is why every county, every family, every Fragile X story matters.”

The community outreach efforts emerged during a strategic planning session in February when the Foundation created its new theme: Fragile X: We’re Everywhere! “Today, we are making the theme a reality and hope to ensure no Fragile X family feels alone,” Miller explained. “We recognized the need to reach out and really connect with Fragile X families as we strive to become one state, 100 counties and one Fragile X Community”

Fragile X Syndrome (FXS) is a genetic disorder caused by a mutation or change in the DNA structure in the X chromosome and is the most commonly known cause of inherited developmental disability around the world. As many as 1.5 million people in the U.S. are unknowingly carriers and when genetically passed on, Fragile X results in a wide range of developmental, physical and behavioral challenges. While Fragile X is more prevalent among males, both males and females can be affected by the condition and both can be carriers.

Supported by the NC Fragile X Foundation, the community is a group of family members and volunteers striving to connect with individuals and families impacted by Fragile X across all 100 counties of North Carolina. Active members in the community can learn about vital resources, services and support; engage with professional therapists, clinicians, educators and providers; and build lasting friendships and connections through social activities and advocacy.

The Fragile X community will be using local media, social media and its current members to reach out to other Fragile X families in their area and across the state to get them connected. Anyone impacted by Fragile X Syndrome is urged to join this growing community by visiting ncfragilex.org/join-our-community/

The mission of the North Carolina Fragile X Foundation is to improve the quality of life for those impacted by Fragile X by promoting awareness and understanding through community education, support, and advocacy.

For more information, contact:
Brittney Miller, President (Formerly Brittney Tillman)
North Carolina Fragile X Foundation
Community Leader
919-376-6912