Given the reality of COVID-19, all in-person events have been canceled. The Foundation is working on options for online opportunities to gather and provide support. Stay tuned for more updates. 

We understand COVID-19 presents unique challenges with social distancing, sheltering in place, and wearing a mask for individuals with Fragile X. Click here for a list of resources for individuals with disabilities and COVID-19. The National Fragile X Foundation also has COVID-19 resources available to support individuals with Fragile X.

Women posing for a selfie group photo at an NC Fragile X event!

Upcoming events

Joint DMHDDSAS and DHB (NC Medicaid) COVID-19 Update Call for BH/IDD Consumers, Family Members and Community Stakeholders

Recurring every other Monday at 2:00 pm.

Annual events

NC Fragile X Picnic

The NCFXF hosts an annual picnic and walk-a-thon to celebrate and grow the Fragile X community. This event brings families from across North Carolina together to build lasting friendships and support networks.

Group of people enjoying a tractor ride at an NC Fragile X event.

NC Fragile X Bowl-a-thon

Each year, the NCFXF proudly hosts the highly acclaimed bowl-a-thon in Clayton, NC. Teams are formed by families and friends to raise funds for the foundation and to compete for the coveted bowl-a-thon championship trophy!

Dawn Rohlik holding a bowling ball with a gentleman at the NC Fragile X Bowl-A-Thon.
Gentleman at the NC Fragile X Bowl-A-Thon winding up to roll a strike.
Two attendies of the NC Fragile X Bowl-A-Thon giving two thumbs up!
Gentleman winding up his bowling swing at the NC Fragile X Foundation Bowl-A-Thon.