Tune In at Noon for our next Sip & Chat Zoom Call on May 15

Please Note: We will be returning to 7 to 8 PM for our Sip & Chat calls in August! Our May and June Sip & Chat calls will be the last ones held from Noon to 1 PM. We’ll take the month of July off and resume calls August 21 at 7 PM. Click here to register.

NC Fragile X Bowl-a-Thon logo

Save the Date! Xtraordinary Fragile X Bowl-a-Thon set for July 14!

In celebration of World Fragile X Day and the NC Fragile X community, the Foundation proudly announces this year’s Xtraordinary Bowl-a-Thon at Rainbow Lanes Family Fun Center, Clayton, NC on Sunday, July 14 from 3 to 5 PM. Everyone is encouraged to form a team with families and friends to raise funds for the Foundation and to compete for the coveted Bowl-a-Thon championship trophy! Advance registration is encouraged, so look for registration info coming soon!

Photos from the 2023 Bowl-a-Thon are posted below:

NC Fragile X Foundation Family & Friends Picnic logo

Fragile X Family & Friends Picnic

Each year, the NCFXF Board hosts the annual Family & Friends Picnic - a day to reunite and gather with our NC Fragile X community! The 2023 event was held in October on scenic and peaceful Lake Macintosh in Burlington, NC welcoming friendly faces, both familiar and new. The picnic was bigger and better with a catered BBQ lunch (with vegetarian and kid-friendly options) and the all new NCFXF Olympic Games!

Our 2023 NCFXF Picnic was a HUGE success!! Thank you to the amazing efforts of all who organized this wonderful event, full of games, resources and connection with members of the Fragile X community.