Tune In at Noon for our next Sip & Chat Zoom Call on June 19

Please Note: Our June Sip & Chat call will be the LAST ONE held from Noon to 1 PM! We will be returning to 7 to 8 PM for our Sip & Chat calls in August!  We’ll take the month of July off and resume calls August 21 at 7 PM. Click here to register.

NC Fragile X Bowl-a-Thon logo

Xtraordinary 2024
NC Fragile X Bowl-a-Thon

The Xtraordinary Fragile X Bowl-a-Thon is back in 2024 offering loads of family fun and games. Bowlers, start collecting your pledges!

Sunday, July 14, 2024 from 3 to 5 PM
Rainbow Lanes Family Fun Center
850 NC-42, Clayton, NC

In celebration of World Fragile X Day and the NC Fragile X community, the Foundation proudly announces this year’s Xtraordinary Bowl-a-Thon! Here's how to participate:

  • Form a team with families and friends to raise funds for the NC Fragile X Foundation – all in celebration of Fragile X Awareness and to compete for the highly coveted, Xtraordinary Bowl-a-Thon championship trophy!
  • Bowlers, start collecting your pledges! All pledges collected will support Fragile X Awareness. CLICK HERE FOR A PLEDGE FORM and more detailed information.
  • Teams of 4 bowlers will compete for the coveted Top Bowler Trophy. Sign up as individuals or as a Team. Registration starts at 2 pm. Bowling starts at 3 pm.
  • Each registration costs $22 and includes one T-shirt. Select sizes during checkout. (Shirt sizes run small – order up one size.) T-shirts are available in Mens sizes S through 4X, Ladies sizes XS through 4X and Youth sizes XS through XL. Additional shirts are available for purchase for $15 online, $20 at the door.
  • Deadline for registration and additional T-shirt orders is July 2nd at noon.
  • Be ready to take part in our famous 50/50 raffle!
  • WEAR your favorite Fragile X T-shirt.
  • Click here to download a flyer to promote the event.

All are welcome - Fragile X families or friends and supporters of Fragile X families. If you don't bowl, please come on out to be a Fan in the Stands! Fans are able to order T-shirts online for $15 each and pick them up at the event, or pay $20 at the door.

If you can't attend and want to DONATE, please use this link:

Can't be there on the 14th? Choose our Virtual OPTION

If you can't make it to our event on July 14th you can still support the NC Fragile X Foundation. Choose the virtual option and participate at your local bowling alley. Register today, collect your pledges, and bowl 2 games at your local bowling alley on or before July 14th! Each Registration includes one T-shirt. Select sizes during checkout. (Shirt sizes run small – order up one size.) T-shirts will be mailed to virtual players.

Phoebe Field, winner of the 50/50 raffle, shows off his prize money.
NC Fragile X Foundation Family & Friends Picnic logo

Fragile X Family & Friends Picnic

Each year, the NCFXF Board hosts the annual Family & Friends Picnic - a day to reunite and gather with our NC Fragile X community! The 2023 event was held in October on scenic and peaceful Lake Macintosh in Burlington, NC welcoming friendly faces, both familiar and new. The picnic was bigger and better with a catered BBQ lunch (with vegetarian and kid-friendly options) and the all new NCFXF Olympic Games!

Our 2023 NCFXF Picnic was a HUGE success!! Thank you to the amazing efforts of all who organized this wonderful event, full of games, resources and connection with members of the Fragile X community.