Sip & Chat Zoom Calls Return at 7 PM on August 21!
Join our monthly Zoom calls and connect with other Fragile X families to discuss topics of interest. Calls will now be held at 7-8 PM starting in August. Mark your calendar for the 3rd Wednesday of every month. Please note we have a new registration link. After registering, you will receive a confirmation email about joining the meeting. Click here to register with the new link.
Xtraordinary 2024
NC Fragile X Bowl-a-Thon
The Xtraordinary Fragile X Bowl-a-Thon is back in 2024 offering loads of family fun and games. Bowlers, start collecting your pledges!
Sunday, July 14, 2024 from 3 to 5 PM
Rainbow Lanes Family Fun Center
850 NC-42, Clayton, NC
In celebration of World Fragile X Day and the NC Fragile X community, the Foundation proudly announces this year’s Xtraordinary Bowl-a-Thon! Here's how to participate:
- Form a team with families and friends to raise funds for the NC Fragile X Foundation – all in celebration of Fragile X Awareness and to compete for the highly coveted, Xtraordinary Bowl-a-Thon championship trophy!
- Bowlers, start collecting your pledges! All pledges collected will support Fragile X Awareness. CLICK HERE FOR A PLEDGE FORM and more detailed information.
- Teams of 4 bowlers will compete for the coveted Top Bowler Trophy. Sign up as individuals or as a Team. Registration starts at 2 pm. Bowling starts at 3 pm.
- Each registration costs $22 and includes one T-shirt. Select sizes during checkout. (Shirt sizes run small – order up one size.) T-shirts are available in Unisex for both Men and Women, sizes XS through 4X and Youth sizes XS through XL. Additional shirts are available for purchase for $15 online, $20 at the door.
- Deadline for registration and additional T-shirt orders is July 2nd at noon.
- Be ready to take part in our famous 50/50 raffle!
- WEAR your favorite Fragile X T-shirt.
- Click here to download a flyer to promote the event.
All are welcome - Fragile X families or friends and supporters of Fragile X families. If you don't bowl, please come on out to be a Fan in the Stands! Fans are able to order T-shirts online for $15 each and pick them up at the event, or pay $20 at the door.
If you can't attend and want to DONATE, please use this link: https://ncfragilex.org/donate/
Can't be there on the 14th? Choose our Virtual OPTION
If you can't make it to our event on July 14th you can still support the NC Fragile X Foundation. Choose the virtual option and participate at your local bowling alley. Register today, collect your pledges, and bowl 2 games at your local bowling alley on or before July 14th! Each Registration includes one T-shirt. Select sizes during checkout. (Shirt sizes run small – order up one size.) T-shirts will be mailed to virtual players.
Fragile X Family & Friends Picnic
Each year, the NCFXF Board hosts the annual Family & Friends Picnic - a day to reunite and gather with our NC Fragile X community! The 2023 event was held in October on scenic and peaceful Lake Macintosh in Burlington, NC welcoming friendly faces, both familiar and new. The picnic was bigger and better with a catered BBQ lunch (with vegetarian and kid-friendly options) and the all new NCFXF Olympic Games!
Our 2023 NCFXF Picnic was a HUGE success!! Thank you to the amazing efforts of all who organized this wonderful event, full of games, resources and connection with members of the Fragile X community.
