Events

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Join our next Sip & Chat Zoom Call on May 21 at 7 PM!

Connect with other Fragile X families to discuss topics of interest. Zoom calls are held from 7-8 PM on the 3rd Wednesday of every month. After registering, you will receive a confirmation email about joining the meeting. Click here to register.

Save the Date! Xtraordinary Fragile X Bowl-a-Thon set for July 20!

In celebration of World Fragile X Day and the NC Fragile X community, the Foundation proudly announces this year’s Xtraordinary Bowl-a-Thon at Rainbow Lanes Family Fun Center, Clayton, NC on Sunday, July 20 from 3 to 5 PM. Everyone is encouraged to form a team with families and friends to raise funds for the Foundation and to compete for the coveted Bowl-a-Thon championship trophy! Advance registration is encouraged, so look for registration info coming soon!

Thanks to Jennifer Keith, pictured with Kathy Moore and Barbara Keith, for the beautiful decorations and cakes.
Sarah Tamura, Kerry McCarthy Adams, Deby Burgess and Richard Tamura relax at the event.
NC DD Council Systems Change Manager Pam Dempsey, Caroline Dempsey and McKenzie Willis are ready to bowl.
NCFXF President Steve Strom presents 2024 bowling trophy to Stephen O'Quinn.
Attendees Linda Keen, Phillip Keen and Jamie Regling enjoy the festivities.
Tim Field and Foundation Board member Juan Pablo Molliendo take time to visit.
Steve Strom presents 2024 raffle winnings to Jamie Regling.
NC Fragile X Foundation Family & Friends Picnic logo

Fragile X Family & Friends Picnic

Each year, the NCFXF Board hosts the annual Family & Friends Picnic - a day to reunite and gather with our NC Fragile X community! While the 2024 event was cancelled due to the devastating effect of Hurricane Helene on Western Carolina, we hope the picnic will return in 2025. Our last picnic was held in October 2023 on scenic and peaceful Lake Macintosh in Burlington, NC with a catered BBQ lunch (with vegetarian and kid-friendly options) and the all new NCFXF Olympic Games!

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