Events

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Special Forum Planned!

Join our December 18 Sip & Chat Call about the Guardianship Process

Members of this group will share their recent experience of the guardianship process, including completing and submitting paperwork to the court, meeting with an attorney guardian ad litem, and having a sheriff serve the papers to their child. Click here to register.

NC Fragile X Foundation Family & Friends Picnic logo

Fragile X Family & Friends Picnic

Each year, the NCFXF Board hosts the annual Family & Friends Picnic - a day to reunite and gather with our NC Fragile X community! While the 2024 event was cancelled due to the devastating effect of Hurricane Helene on Western Carolina, we hope the picnic will return in 2025. Our last picnic was held in October on scenic and peaceful Lake Macintosh in Burlington, NC with a catered BBQ lunch (with vegetarian and kid-friendly options) and the all new NCFXF Olympic Games!

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NC Fragile X Bowl-a-Thon logo

Xtraordinary NC Fragile X Bowl-a-Thon

Each year, the NCFXF proudly hosts the highly acclaimed bowl-a-thon in the central region of North Carolina in July during Fragile X Awareness Month. Teams are formed by families and friends to raise funds for the foundation and to compete for the coveted bowl-a-thon championship trophy!

The 2024 Xtraordinary NC Fragile X Bowl-a-Thon offered loads of family fun and games. Click here to view photos from the event.

Attendees Linda Keen, Phillip Keen and Jamie Regling enjoy the festivities.
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Sarah Tamura, Kerry McCarthy Adams, Deby Burgess and Richard Tamura relax at the event.