Deby Burgess and her husband Ray live in Mebane, NC. They have four adult children. Their 35-year-old son John David has fragile X.
Deby has worked part time in the Duke Fragile X clinic since 1990. She is a Senior Research Specialist with their program but feels that her real contribution to the clinic is being able to identify with the impact that fragile X has on families. She relates to what they are experiencing with their child and the issues they face with their extended family members.