Tune In at Noon for our next Sip & Chat Zoom Call on May 15

Please Note: We will be returning to 7 to 8 PM for our Sip & Chat calls in August! Our May and June Sip & Chat calls will be the last ones held from Noon to 1 PM. We’ll take the month of July off and resume calls August 21 at 7 PM. Click here to register.

Welcome to the NC Fragile X Foundation.

If you are new to the Fragile X community, we welcome you! Whether you have Fragile X, love someone impacted by Fragile X, work with someone who has Fragile X, or just want to learn more—we are here to help! Learn how you can be involved!

We are a group of committed volunteers and family members supporting individuals impacted by Fragile X syndrome. 

People sitting on floor in a circle stretching out resistance bands over their heads.

Founded in 1993, as the North Carolina Foundation to Assist Families with Fragile X Syndrome and Related Disorders of Development.

The Foundation worked to connect families to services, to learn more about the Medicaid services available for families, and provide educational workshops.

In 1998, the NC Fragile X Foundation hosted the 6th International Fragile X in Asheville at the Grove Park Inn with over 1,000 people attending from across the world.

In 2019, the Foundation created a succession plan, clarified their mission, and set a course for the future.

  • Tune in at Noon for Next Sip & Chat – May 15
  • NC Fragile X Members Attend NFXF Advocacy Day
  • NCCDD to Host I/DD Town Hall May 2nd!
  • NCDHHS Hosting AT Resource Fair May 3
  • Welcome to – We Will Walk With You
  • New Inclusion Connects Website
  • What To Do before Tailored Plans Launch July 1
  • NC Medicaid’s Transition to 1915(i)
  • Save the Date! Fragile X Bowl-a-Thon – July 14
  • Make a Difference – Apply for the NCFXF Board!

Mark Your Calendar! 2024 Xtraordinary Bowl-a-Thon Set for Sun, July 14

Look forward to family fun at this yearly fundraiser to raise Fragile X awareness.

Family & Friends
Fragile X Picnic

Our 2023 NCFXF Picnic was a HUGE success!! Thank you to the amazing efforts of all who organized this wonderful event! Hope to see you October 2024!

About Fragile X


Fragile X Syndrome (FXS)

Fragile X Syndrome (FXS) is a genetic disorder caused by a mutation (a change in the DNA structure) in the X chromosome.


Your generosity will help us achieve our mission of improving the lives of those impacted by Fragile X Syndrome.