Bid to Support the NC Fragile X Foundation & Spend Christmas Week in the Smoky Mountains!

If you’re looking for a Christmas retreat and possibly a white Christmas, you can support the Foundation by bidding on a Christmas vacation in the Smoky Mountains. The package includes a one week hotel stay for two at Laurel Crest Resort, Pigeon Forge, Tennessee, December 21 – 28. Read more details here. All proceeds will be donated to the NC Fragile X Foundation. Bidding started on November 20 and ends in 10 days!

Welcome to the NC Fragile X Foundation.

If you are new to the Fragile X community, we welcome you! Whether you have Fragile X, love someone impacted by Fragile X, work with someone who has Fragile X, or just want to learn more—we are here to help! Learn how you can be involved!

We are a group of committed volunteers and family members supporting individuals impacted by Fragile X syndrome. 

People sitting on floor in a circle stretching out resistance bands over their heads.

Founded in 1993, as the North Carolina Foundation to Assist Families with Fragile X Syndrome and Related Disorders of Development.

The Foundation worked to connect families to services, to learn more about the Medicaid services available for families, and provide educational workshops.

In 1998, the NC Fragile X Foundation hosted the 6th International Fragile X in Asheville at the Grove Park Inn with over 1,000 people attending from across the world.

In 2019, the Foundation created a succession plan, clarified their mission, and set a course for the future.

  • Bid to Support the NCFXF – Spend Christmas Week in the Smoky Mountains!
  • The Impact of Hyperarousal & Sensory Symptoms in Fragile X Syndrome
  • 20th NFXF Advocacy Day, Washington, DC, Feb 26 & 27, 2024
  • Fragile X Family & Friends Picnic a Success!
  • Sip & Chat – Moving to a New Time in January!
  • Innovations 1915(C) & Appendix K Flexibilities
  • Tailored Plans Coming in 2024

Xtraordinary Bowl-a-Thon

Thanks to all who attended or supported the 2023 bowl-a-thon in July. Family fun was had by all at this yearly fundraiser to raise Fragile X awareness.

Family & Friends
Fragile X Picnic

Our 2023 NCFXF Picnic was a HUGE success!! Thank you to the amazing efforts of all who organized this wonderful event! Hope to see you October 2024!

About Fragile X


Fragile X Syndrome (FXS)

Fragile X Syndrome (FXS) is a genetic disorder caused by a mutation (a change in the DNA structure) in the X chromosome.


Your generosity will help us achieve our mission of improving the lives of those impacted by Fragile X Syndrome.