Duke Fragile X Clinic

Established in 1989, the Fragile X Clinic at Duke University School of Medicine was one of the first clinics in the country dedicated to the study and care of those with Fragile X. With a simple mission to help families and individuals with Fragile X Syndrome, the clinic became a pioneering center in those, “ the early days” of Fragile X Syndrome. Originally based at the Trent Drive building, in 2014 the clinic moved to the Lenox Baker Children’s Hospital, 3000 Erwin Road, Durham, NC 27705.

Our clinic serves families on a weekly basis. We welcome new families, as well as families that have been coming for several years. Most of our patients are North Carolina residents, but we also see individuals from out-of-state.

**For new and return appointments, or for medication refills on established patients, contact:
Stephanie Thera at (919) 668-4468.

Our clinic’s providers include:


Dr. Ave M. Lachiewicz, MD,
Board Certified Developmental-Behavioral Pediatrician

 

 

 


Dr. Gail A. Spiridigliozzi, PhD
Clinical Child Psychologist

 

 

 


Dr. Allyn McConkie-Rosell, PhD, CGC
Genetic Counselor

 

 

 


Deby Burgess, Parent Assistant and Clinic Liaison
ncfraxfoundation@mebtel.net

 

 

 

There are also numerous providers at Duke and in the community that assist with services, including psychiatrists, ophthalmologists, occupational therapists, speech pathologists, and orthopedic surgeons.The Duke Fragile X Clinic is affiliated with the Fragile X Clinical and Research Consortium (FXCRC) of the National Fragile X Foundation.

For more information about the Duke Fragile X Clinic, including information about the Justin Silver Fly With Me Fund, offered to assist qualifying families with costs associated with a visit to the clinic, please contact Deby Burgess at: ncfraxfoundation@mebtel.net.For an appointment, contact the clinic at: (919) 668-4468.

Directions to the clinic: