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Tune In at Noon for our next Sip & Chat Zoom Call on April 17

For the next six months we will hold our Sip & Chat calls from Noon to 1 PM. Join our monthly Zoom call on Wednesday, April 17, 2024 and connect with other Fragile X families to discuss topics of interest. Mark your calendar for the 3rd Wednesday of every month at Noon. Click here to register.

Welcome to the NC Fragile X Foundation.

If you are new to the Fragile X community, we welcome you! Whether you have Fragile X, love someone impacted by Fragile X, work with someone who has Fragile X, or just want to learn more—we are here to help! Learn how you can be involved!

We are a group of committed volunteers and family members supporting individuals impacted by Fragile X syndrome. 

People sitting on floor in a circle stretching out resistance bands over their heads.

Founded in 1993, as the North Carolina Foundation to Assist Families with Fragile X Syndrome and Related Disorders of Development.

The Foundation worked to connect families to services, to learn more about the Medicaid services available for families, and provide educational workshops.

In 1998, the NC Fragile X Foundation hosted the 6th International Fragile X in Asheville at the Grove Park Inn with over 1,000 people attending from across the world.

In 2019, the Foundation created a succession plan, clarified their mission, and set a course for the future.

  • Next Sip & Chat Call – March 20 at Noon!
  • Will You Make a Difference? Apply for the NCFXF Board!
  • 20th NFXF Advocacy Day, Washington, DC
    February 26 & 27, 2024
  • Appendix K Flexibilities Approved for Innovations and TBI Waivers
  • Roadmap to Strengthen NC’s Caregiving Workforce
  • First In-Person Regional Listening Session hosted by The Arc of NC Set for March 7

Xtraordinary Bowl-a-Thon

Thanks to all who attended or supported the 2023 bowl-a-thon in July. Family fun was had by all at this yearly fundraiser to raise Fragile X awareness.

Family & Friends
Fragile X Picnic

Our 2023 NCFXF Picnic was a HUGE success!! Thank you to the amazing efforts of all who organized this wonderful event! Hope to see you October 2024!

About Fragile X

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Fragile X Syndrome (FXS)

Fragile X Syndrome (FXS) is a genetic disorder caused by a mutation (a change in the DNA structure) in the X chromosome.

Donate

Your generosity will help us achieve our mission of improving the lives of those impacted by Fragile X Syndrome.