Welcome to the NC Fragile X Website

The NC Fragile X LINKS Group was created by families affected by Fragile X Syndrome to help, assist, guide and connect with other families in the Carolinas, also affected by Fragile X and associated developmental disorders. Perhaps you are a family newly diagnosed and looking for advice as to the next steps, coping with life and wanting to connect with other families with similar experiences? Maybe you are a family, individual or professional experienced with Fragile X, its treatment, therapeutic regimen, challenges and joys? Or, even if you are here to simply find out more about this disorder (and, if so, we’re delighted that you are), we hope that the information and resources you find here will set you on the right path.



To learn more and register, click on the logo


To pay the registration fee for the workshop, please select “individual” or “related couple” from the drop down box. Then click the “pay now” button at the bottom of the page.

2014 NC Fragile X Educational Workshop

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