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Welcome to the NC Fragile X Website

The NC Fragile X Foundation Support Group was created by families affected by Fragile X Syndrome to help, assist, guide and connect with other families in the Carolinas, also affected by Fragile X and associated developmental disorders. Perhaps you are a family newly diagnosed and looking for advice as to the next steps, coping with life and wanting to connect with other families with similar experiences? Maybe you are a family, individual or professional experienced with Fragile X, its treatment, therapeutic regimen, challenges and joys? Or, even if you are here to simply find out more about this disorder (and, if so, we’re delighted that you are), we hope that the information and resources you find here will set you on the right path.

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Click to go to our Facebook Page. Information on local events, research, studies and support.

Click to go to our Facebook Page. Information on local events, research, studies and support.


Want to learn about the next steps? Is it time to start thinking about your future and that of your loved one, afflicted with Fragile X Syndrome or other IDD? Join us for our Succession Planning Workshop.

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